Ian's Blackbushe to Paris page
WHAT IS A-T?
A-T (Ataxia Telangiectasia) is a rare, genetic degenerative disease of childhood that affects multiple systems of the human body.
There are no indicators at birth and most children with A-T appear healthy during the first year of life. The first signs of A-T are neurological: poor balance and reduced motor coordination (ataxia), insulin-resistant diabetes, involuntary movements and difficulty with speech. As a child gets older, some types of cells in the central nervous system start to die, leading to progressive neuromotor dysfunction.
Health progressively deteriorates causing an overall loss of coordination and muscle control. Children are usually confined to a wheelchair by around the age of 10 and will need assistance with everyday tasks. Children often lose their ability to write, speech becomes slower or slurred and reading becomes problematic. A-T patients are also predisposed to developing cancer and their immune system is weakened.
Life span is shortened, usually by respiratory failure or cancer. A-T is life-limiting, with those affected generally living until their twenties. There is currently no cure for this devastating disease.
Blackbushe to Paris Cycle
Cycle from Blackbushe to Paris - an epic but achievable challenge for both novice and proficient cyclists. After 3 days of pedalling and 200 miles in the saddle finish under the iconic Eiffel Tower for a team photo and a celebratory glass of Fizz.
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with gift aid: £15,202.50
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